RUN 4 A MIRACLE --- CURE SMA (SPINAL MUSCULAR ATROPHY)
JOIN MY TEAM - BY MOVING 4 A MIRACLE ON FEB 26 EITHER IN WALT DISNEY WORLD OR IN YOUR NEIGHBORHOOD. (Walk,Run, Bike, Swim, Dance - Just move)
For the past year, I have been training for the Disney Princess Half Marathon to be run on Feb 26 2012. I am running to raise awareness and NEEDED money to find a treatment and or cure for Spinal Muscular Atrophy a fatal motor neuron disease of infants and children. 1 in 40 people or 7 million Americans are SMA carriers. 1 in 6000 lives births are affect by SMA. SMA affects all voluntary motor movements- walking, breathing, swallowing, talking, head and neck control and much more. There is nothing good about SMA.
UNTIL NOW ---
New SMA research update published in Nature Magazine reports the continued progress with the AAV9 gene replacement therapy that is being done right here at Nationwide Children's Research Institute and OSU. Dr. Brian Kaspar is getting closer towards that Miracle for Madison and ALL her SMA friends! Thanks to several SMA nonprofits the gene therapy is moving forward at an incredible pace but many children are still suffering and dying from this horrible disease. PLEASE help us spread the word. Another $500,000 is NEEDED to get this into human clinical trial. if all continues to go well it will happen in early 2012! YOU can be part of a MIRACLE right now!
Make a Donation to the SPINAL MUSCULAR ATROPHY Gene Therapy Research.
This fundraiser is raising money to help Nationwide Children's Hospital. You are invited to help make a difference in the lives of the patients and families Nationwide Children's serves.
Interested in having your own fundraising page? Join now!